Impact of Lifestyle Modification Module on Adherence to Therapeutic Regimen of Children and Adolescents with Beta Thalassemia Major
Keywords:Children–Adolescents-Adherence-Therapeutic Regimen–Beta-thalassemia major
Healthy lifestyle behaviors are important for thalassemic children and adolescents to prevent disease-related
complications and improve quality of life. This study aimed to evaluate the effect of lifestyle modification
module on adherence of children and adolescent suffering from beta-thalassemia major. Design: A quasiexperimental design was utilized to conduct the study. Sampling: A purposive sample comprised of 80
children & adolescents with beta thalassemia major. Tools: I-Interviewing questionnaire, II-Children
adherence tools: It was used to assess children and adolescents’ adherence with: (a) Medication (Morisky),
(b) Therapeutic regimen (diet, physical exercise, and follow up). (c) Levels of perceived stress, (d) Sleep
quality domains and developed intervention lifestyle modifications module.
Results: This study revealed that more than three quarter had satisfactory knowledge about ß-TM post
lifestyle modification module implementation and the majority of children and adolescents with ß-TM were
adherent to taking medicines yesterday post module implementation.
Conclusion: There were significant improvements of knowledge and adherence of the studied children and
adolescents with ß-TM to therapeutic regimen post the lifestyle modification module application and there
were positive correlations between all variables of the studied children and adolescents with ß-TM.
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