Quality of Life among the Parents of Children with Hematological Malignancies: A Pilot Study
Keywords:Quality of Life, parents, children with haematological malignancies
Background: Haematological malignancies are the most common cancer among the children in the age group
of 0-14 years. Leukemia is the most prevalent cancer among these children. The diagnosis of haematological
malignancy in a child is a frightening situation for the parents as well as the family, as they are the primary
caregivers of the children. The aim of the present study was to assess quality of life (QoL) among parents of
children with haematological malignancies.
Methods: The cross-sectional pilot study included 30 parents of children between 0-14 years of age taking
treatment at the two tertiary cancer care centres of Kerala, India. The data regarding QoL was obtained
through Parents a validated Malayalam version of parent’s quality of life inventory (P-QLI). Descriptive
statistics was used to identify quality of life of the parents.
Results: An equal distribution of fathers and mothers were maintained in the study ( 15 mothers and 15
fathers). The average age of the parents was 26± 2 years (for mothers) and 34± 3 years (for the fathers).
Majority (73.3%) of children had Acute Lymphocytic Leukemia (ALL), and their mean age was 6±4 years.
The statistical analysis showed that 33.3% of the parents had a poor quality of life after the diagnosis of
haematological malignancy for their children. In addition, the mean QoL scores among the parents of children
with haematological malignancies were less thatn50% of the total score of the P-QLI .The haematological
malignancies among the children had a negative impact on physiological, psychological, social, vocational,
economic, and spiritual dimensions of parent’s quality of life.
Conclusions: This study showed that QoL measured by QLI-PCL in parents of children with haematological
malignancies were poor, and the present study put forward the need strengthening parent support services
among the parents of children with cancer.
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